My Story...

dylan had been sick for quite a while with this and that. On January 8th, his peds DX him with Mono but sent us for a full work up. Short story of things...it wasn't Mono his white count was 258,000. On Jan 10th, Dylan went into surgery to have a Central Line placed. Chemo started that night. We endured and finally finished his first induction On Jan 21rst. On Jan 16 he was diagnosed with pneumonia and had a chest tube placed. It was left until Jan 19th when it was removed. They upped his antibiotic use that weekend as he kept spiking fevers. On Jan 19th we also received the best news.... Devin (one of the twins) is a PERFECT match for Dylan. We had a bone marrow sample taken from Dylan on Feb 9 and he was not in remission. On Feb 12, he was readmitted to the hospital for a different set of chemo drugs to try toachieve remission. On March 8th, Dylan was diagnosed with a fungal infection in his lungs. We ALSO found out he is in REMISSION (2%) on March 21rst!!! Come to find out that was only a partial remission. Dylan was still 12% leukemic on his a recent bone marrow biopsy. He started another round of chemo on April 9th and they will be adding another med (Mylotarg) that he will be having on day 7th of this round. Unfortunately this round ended in disappointment for us as his bone marrow showed 30% leukemic. On June 15th, Dylan started his fourth round of chemo with ARA-C and Clofarabine. On July 15th, Dylan had ANOTHER biopsy with more positive results. He was FINALLY in an active remission at about 3 1/2% . On July 22nd, Dylan started his 5th round of chemotherapy (same as the fourth just ALITTLE stronger). Unfortunately Dylan's Bone Marrow aspiration showed about 14 % leukemic but we have decided to press on with transplant since we are out of standard chemo. SEPTEMBER 20th, 2007 Dylan had his BMT from his little brother Devin! He was HOME on October 18th, 2007 and did
REMARKABLY WELL through the WHOLE transplant procedure. On Halloween, we
received the call....Dylan is leukemic-free! Pray he stays this way forever!!! Unfortunately Dylan had relapsed 71 days out of transplant on Dec 3...with 25% leukemic blasts in hisbone marrow. We were than off to Sloan Kettering in NYC where we did a round of chemo called TVTG then getting into a clinical trial with them using NK cells! We
were always HOPEFUL AND NEVER BACKED DOWN......GO AWAY LEUKEMIA! After the
NK cells failed we tried one other clinical trial called FLT3's. Unfortunately that also
failed. April 1st Dylan came home...to spend time with his 3 younger brothers and parents.... April 25 we went to Florida on his MAW trip. July 5, 2008 our beloved Dyl passed knowing how much he IS loved. ALWAYS LOVED, NEVER Forgotten....
THANK YOU to all who have given of themselves along our journey. We appreciate it more than we could ever say.